The story of the Brain on fire
So this is a true to life, Dr. House MD
medical
thriller.
When we're first introduced to Susannah
Cahalen she's a 20-something reporter
for
the New York Post when one week she
notices
two tiny red dots on her arm.
Absolutely certain it's bed bugs she hires
an exterminator to examine her
apartment and
when he comes up empty she still insists
he
fumigate the entire place.
Meanwhile at work she's having a hard
time
concentrating, is having sort of mild
mood
swings and vacillates between bouts of
euphoria
and feelings of inadequacy at work.
Bit of an imposter syndrome.
Nothing too remarkable.
Frankly that's me on any given week.
But the paranoia is starting to mount.
She's starting to snoop in her boyfriend's
email account, absolutely certain he's
been
cheating on her.
And she's having bouts of numbness,
delusions,
hearing voices, having out of body
experiences,
intense hallucinations, she absolutely
certain
she can age people with her mind.
It's all starting to sound like someone
spiked her breakfast omelettes with a
hefty
dose of shrooms.But visits to the doctor come up empty.
Her MRIs come back clean, blood tests
find
nothing.
Doctors are simply dismissing it as too
much
stress, maybe a little bit of anxiety.
One especially helpful doctor wags his
finger
and is absolutely certain that this is just
the result of her clearly drinking and
partying
too much.
But things are getting worse.
Susannah's absolutely certain now that
her
father has killed her mother and she
almost
leaps out of a second story window.
Later she will try and jump out of a
moving
car.
And then one evening at her boyfriends
home
she erupts in this massive seizure with
blood
and foam filling her mouth and proceeds
to
descend into a month of darkness.
Susannah Cahalen applies her reporterly
acumen
to uncover what happens in the ensuing
month.
She relies on medical records, her own
frantic
scribblings at the time, video footage and
countless interviews with friends, family
and medical professionals who would
eventually
piece together what was happening to
her and
give it a name, NDMA autoimmune
encephalitis.
OK so some of you are probably
screaming spoilers
here.But I mean this is a work of non-fiction.
The subhead is My Month of Madness.
You could pretty safely assume that the
author
made it out to the other side.
And let me tell you it is no less
compelling
knowing that.
This is truly a real-life episode of House.
While cutting edge diagnostic equipment
and
countless doctor visits had come up
empty,
it is a simple pencil and paper test
administered
by one Dr. Souhel Najar that leads to the
path of discovery.
Susannah Cahalan understands how truly
lucky
she is.
Lucky that her and her family were in a
position
to afford treatment that would run up to
well
over $1 million dollars by the time it was
done.
Lucky that her parents refused to dismiss
it as schizophrenia, mental illness or take
the word of one especially stubborn
doctor
that wanted to dismiss it as her being a
party
girl that had overindulged.
Lucky that when it happened.
Had it happened even 2 years earlier
there
wouldn't have been research in place to
properly diagnose her.
And lucky truly to have run into Dr. Souhel
Najjar.Centuries earlier Susannah might have
been
considered possessed in need of an
exorcism.
In fact symptoms of autoimmune
encephalitis
parallel that of the Exorcist including
deepened
vocal affect, rigid body postures and
evidence
of a patient crab walking.
Susannah's boyfriend still can't watch
the Exorcist after having witnessed
several
intense episodes.
Cahalen a reporter of the old school and
she
gets her hooks into you early.
She is unflinching in her reportage even
when
she herself is the subject and it makes
for
an intense read.
Lives have been saved as a result of this
book.
Often misdiagnosed she shines a light
Often misdiagnosed she shines a light
on a very rare disease.
Thanks to Marianna Neal from
Impression Blend
for the Goodreads recommendation.
It's been sitting on my TBR for awhile but
that nudge also knowing that it premiered
at TIFF recently finally got me to pick up
the book and I'm glad that I did.
The movie stars Chloe Grace Moretz and
getting critically savaged so do yourself
a favour and read the book instead.
You'll be glad you did.
In the meantime - Keep reading and we'll
talk to you soon. Bye.
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